One of the outputs from the study was collaboration between experts to produce a resource to assist parents, educators and healthcare professionals: Evidence-informed Advice for Best Practice in Supporting Pathological Demand Avoidance, also available to download from this web page. Findings from this study were presented at the Autism Europe and Autistica conferences in 2019, and at the first PDA conference in Ireland on the 25th January 2020, and the presentation is available to download from this page. ![]() In 2018, Prism DLR commissioned a research study to investigate PDA within the context of Ireland - Mapping Experiences of Pathological Demand Avoidance in Ireland. In Ireland, there is lack of research exploring PDA, and the lived experience among individuals on the autism spectrum and their families. Research suggests that without awareness, acceptance and understanding, autistic individuals with a PDA profile are at risk of lifelong negative impacts on education, mental health, employment, and inclusion in the community. It is particularly important to give a voice to autistic children, teenagers, individuals and their families. This group is for parents, carers and professionals supporting those with Autism who experience extreme and persistent Anxiety Based Demand Avoidance (Pathological Demand Avoidance). ![]() Geneva: World Health Organisation.Following increasing interest by members, we set up PRISM PDA Ireland in April 2017. ICD-11: The 11th revision of the international classification of diseases. Pathological demand avoidance: My thoughts on looping effects and commodification of autism. World Journal of Clinical Pediatrics, 7(1), 9–26. Behavioural and emotional disorders in childhood: A brief overview for paediatricians. Child and Adolescent Mental Health, 23(3), 220–227. Dimensions of difficulty in children reported to have an autism spectrum diagnosis and features of extreme/‘pathological’ demand avoidance. O’Nions, E., Viding, E., Floyd, C., Quinlan, E., Pidgeon, C., Gould, J., & Happé, F. European Child & Adolescent Psychiatry, 25(4), 407–419. Identifying features of ‘pathological demand avoidance’ using the diagnostic interview for social and communication disorders (DISCO). O’Nions, E., Gould, J., Christie, P., Gillberg, C., Viding, E., & Happé, F. Journal of Child Psychology and Psychiatry, 55(7), 758–768. ![]() Development of the ‘Extreme demand avoidance questionnaire’ (EDA-Q): Preliminary observations on a trait measure for pathological demand avoidance. O’Nions, E., Christie, P., Gould, J., Viding, E., & Happe, F. Archives of Disease in Childhood, 88(7), 595–600. Pathological demand avoidance syndrome: A necessary distinction within the pervasive developmental disorders. ![]() A mismatch of salience: Explorations of the nature of autism from theory to practice. Journal of Research in Special Educational Needs, 16(4), 254–263. Mapping the educational experiences of children with pathological demand avoidance. Lancet Child & Adolescent Health, 2(6), 455–464. Pathological demand avoidance: Symptoms but not a syndrome. Green, J., Absoud, M., Grahame, V., Malik, O., Simonoff, E., Le Couteur, A., & Baird, G. Journal of Child Psychology and Psychiatry, 55(7), 769–770. Commentary: PDA – Public display of affection or pathological demand avoidance? – Reflections on O’Nions et al. The distinctive clinical and educational needs of children with pathological demand avoidance syndrome: Guidelines for good practice.
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